MY SON HAS PDD NOS AND SEEMS TO BE GETTING WORSE?

I have a 5 year old son who was dx'd near Pdd-Nos. He was doing really good for a while. But as of the past few months he seem to be getting worse. He has alot more meltdowns, and they last alot longer. Some times its a whole morning thing. Its Not predictable anymore what triggers him, Or what will help him. Is it normal for Autistic children to enjoy such extreme ups and downs? Or should I be worried something else may be going on? If you could just share your advice or story I would appreciate it.
Answers:    Talk to a behavior specialist. Your school district should be capable of provide one to evaluate your son as part of his "free and appropriate education." They might be able to distribute you some better answers than you are likely to get on Y!A. Also, try contacting some of the Autism parent support groups for some ideas. Beware that while several of the parents are good, you will also run into some very bitter, angry people contained by those. Just ignore them, and find the parents that aren't semi-autistic themselves. They are much easier to deal with.
Has he be seen by a Developmental Behavioral Pediatrician? If not then I would make an appointment next to one as soon as possible. The best doctor's I have found for my son have been at a principle hospital. Keeping to a strict picture schedule works for him and helps to decrease his meltdowns and rage. Here is how I made our schedule:

1. make a list of adjectives the things he does including infrequent activities too.
2. group these things into categories such as outings and appointments, chores, morning routing, evening routine, daily actions, no school day activities, stirring activities etc.
3. go online to http://www.google.com; click on images on the top of the page.
4. enter the mark of the activity such as child brushing teeth and you will easily find pictures of what you are looking for. I found most of my pictures online either on google or the website such as his school's website give me a picture of his school which I copy and pasted to a Word document.
5 copy and paste to word. Below the buzz write a simple 1-2 words to explain what it is.
6. Print and cut all the pictures out.
7. Buy some laminating paper. They have this cheap at WalMart.
8 Laminate the pictures/words
9. Buy some velcro
10. Stick one side of the velcro to the hindmost of the picture and one to the wall or door where you have enough room to put the picture calendar.
11. We have our morning routine (wake up, get dressed, breakfast, brush teeth, meds) and our evening routine (bath, pajamas, grace and dinner, brush teeth, read book, bedtime) on regular paper tape to the wall because these do not change.

At night before he go to bed I let my son help me pick activities for the subsequent day if he is in the mood, if not I do it myself combining endeavours from all the areas with atleast 2 active events and 2 chores. His school sent home some work for the summer and his sensory diet which helps him alot. If your son does not have one I would request one through getting OT or PT sensory integration services at his conservatory. The schedule along with the sensory diet help alot. How does your son sleep? If he have issues then a weighted blanket might help him as it does my son. My son is also on medications that relief him control his body and reduce the frequency of his rages considerably. My son has other diagnoses along near his PDD-NOS including Bipolar for which he sees a psychiatrist. If your son gets to the point where you grain he is a danger to himself or others you may need to get him hospitalized surrounded by a child psychiatric unit. You may also want to consider taking him to a child psychiatrist who can tell you if he thinks meds would sustain your son. It is normal for children with any Autism Spectrum Disorder to have ups and downs because they do not figure out the world around them. It is confusing and very unfair to them. It is also easily overstimulating which cause them to act up as well. My son has other been very easily overstimulated by lights, hum, crowds, certain foods, certain clothing etc. He also has a lofty anxiety level. If you study your son you will most likely learn what cause him to act up. Try to keep a log of his behaviors when he acts up. What be going on prior to the incident, where were you, what was the environment approaching, what happened, what did you do, what was the result... this way you can find out a possible motivation for him acting up. Sometimes I have no clue why my son acts the way he does, but most of the time I can amount it out by studying him. I would be happy to give you more support and answer any more questions you might own. Feel free to email me. Source(s): Mom of almost 7 y.o with PDD-NOS

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